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Pati's Cancer Blog

Lymphedema anyone?

Saw my breast cancer surgeon yesterday - at the urging (insistence really, since they made the appointment for me "behind my back") of my medical oncologist. I have lymphedema in my left arm pit and in the left breast just above the incision. I noticed about 5 weeks ago that my finger was swollen up over my wedding ring and had a "heckuva" time getting it off my finger; now I wonder if that isn't also lymphedema - still can't get my ring on but the swelling seems a little less.

Anyway, I have to wait more than 5 weeks to see a lymphedema therapist (surgeon referred me) - which is the pits since I am hurting "now." I was also told to try wearing a tight bra (I do anyway), even to sleep in, which I started doing last night. It helped but did not give me complete relief. The bigger issue is that I usually sleep on my left side (painful side) in order to facilitate my breathing - which is affected negatively by my myasthenia gravis. Using home oxygen helps; however, Medicare will not approve me using oxygen since my saturation numbers don't go low enough. With myasthenia it is the CO2 retention they worry about, which is not measured by a pulse oximeter. One would think with that diagnosis Medicare would approve home oxygen but nope .. we hafta pay for it.

Enuff griping. Still grateful for my loving family.

Thomas threw a punch at your cancer.
Laurie, Betsy sent you a prayer.
Thomas, Becky sent you a hug.
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I have it in both legs and my cousin has it in one arm (we think anyways) Hope u feel better.
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*soft paw* Sounds so painful .. and 5 weeks to wait is 'way too long. And what the heck is wrong with Medicare?? grrrrrrr We're sending you healing vibes and gentle hugs :*)
Hugs, Pati. What is this about sleeping on the left side? For years, I have slept on my left because I feel like my breathing is impaired if I sleep on my right. No doctor has answered my question about this.
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Got a reason for hurting ..

I have cellulitis of my left breast and possibly lymphedema of the breast and axilla (pit) area. Was given Keflex to combat the cellulitis (which apparently was the cause of the redness which I noticed but didn't think that much of it) for 10 days. Lymphedema treatment is pending my response to the Keflex.

I'm grateful and thankful that my breast cancer is being treated by such a caring team at Orlando Health UFCC; my breast oncologist is stepping up from seeing patients and going into full time research. I'm glad for her, sad for me. Her wonderful assistant/ARNP is going with her. I had a choice as to who I wanted to see and I chose another female, a fellow who was trained by her, and will meet her in November. My follow-up mammogram is scheduled for the end of October. I am expecting good news about my left breast with prayers/fingers crossed for my right breast.

I see my neurologist a week from today; hope to get some definitive answers about my MG. I want my life back - or at least to be as mobile and able as I can be. Lying around too weak to do much for myself or family is not how I want to live out the rest of my life. I know my cancer sisters and brothers have challenges they face as well. We must pray for one another. Whatever strength we have comes from Him.

Thank you for reading this.

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Thomas threw a punch at your cancer.
Thomas sent you a prayer.
4 people sent you a hug.
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No doubt it's a very long road for you and hopefully a great new team of professionals Will be able to carry on with your extended treatments. Here at the blog I have made many friends who take long Journeys through their cancer trips. Each person has their own set of challenges and in that regard cancer is quite different from one to another. Thankfully we have this forum to allow us to unwind and stretch our emotions hopefully to have people share they're empathy and suggestions. Keep posting as it is always interesting to find new treatments that help our fellow cancer Fighters but not only for that but to receive the support you should from the good people here. Take care and I pray for you from this side of the Border.
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Vital Info


November 5, 2016

Orlando, Florida, USA

May 19, 1951

Cancer Fighter

Cancer Info

Breast Cancer

not yet known

November 2

Right now, the word itself

Just starting my journey

Pray for me

pre-cancer in one breast with every 6-month follow-ups. Only had "aching" in breast with cancer with my arm pit hurting when touched.

don't yet know

again, don't yet know



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